Misty Vanderweele

Don't Forget the Siblings Misty Vanderweele First edition

Don't Forget the Siblings; Growing up on the Sidelines of Duchenne Muscular Dystrophy contains the heart-warming and sometimes heart-breaking stories of 20 families. These stories chronicle what Duchenne siblings go through on a regular basis from childhood into adulthood. The hard reality is that Duchenne Siblings grow up knowing that they will most likely see their brother or sister die unless a cure is found. The Duchenne siblings who are left are the final witnesses. They have no choice but to stand by and watch Duchenne ravage their sibling's bodies. They watch their parents grieve while they themselves try to navigate the turmoil. They will have to deal with Duchenne for the rest of their lives.